"Hello dear survivors, you faithfully fill in this anonymous survey. The number of participants is now - date: 17-07-2019 - 183 and that can certainly be called large. Soon I will come back with a renewed report that displays the image even better Someday I hope to find a student who wants to process this survey more statistically and therefore more scientifically, so that the results also get more say. So keep on participating and yes it is anonymous."
Actual responses: 104 participants date: 28-03-2018
A preliminary report:
Of the 104 people, 78.84% report having been traumatized in a family context, of which 59.62% said they had been abused or mistreated between [0-12 years], which is very worrying in view of their duration (12 years) and age.
It is also worrying that 66.35% indicated that they had already been abused and or abused before the age of six.
But even more that 94.23% indicated that they had been abused for a long time.
83.65% indicate that they can find themselves in the diagnosis.
People are on average moderately satisfied with the help, with an average rating of 4.9 on a scale of [0-10]
In the assessment there were outliers, extreme low and high. This distorts the trend or what can be seen as a norm.
It was striking that those with psychosis, 8.65% valued the help with a lower average score of 3.6 on a scale of [0-10]
Also noteworthy is that those with a addiction appreciate the help with an average of 5.9 on a scale of [0-10], in addition to those with an eating disorder with an average of 5.3 on a scale of [0-10]
83.32% of the people who were included in a one-off study indicate that they have suicidal thoughts or have made an attempt and also suffer from depression
69.77% of the group of people with depressive complaints also had suicidal thoughts or reported an attempt.
In general, it was noted that there should be more help and more knowledge about (complex) PTSD.
90.38% report suffering from Complex PTSD
84.62% report having anxiety or panic disorder
82.69% indicate that they have depressive symptoms
64.42% indicate that they have dissociative complaints
59.62% indicate that they have ever attempted suicide or have thoughts.
58.65% indicates that they have attachment problems
50.96% indicate that they have personality problems
36.54% indicate having phobias (also social)
36.54% indicate having an eating disorder
28.85% indicates having problems with auto-mutilation
25.96% indicates having an addiction
8.65% indicate that they have (had) psychotic complaints
- Medication 99.04%
- psychotherapy 84.62%
- Therapeutic community 12.5%
Between [2-5] 9.26%
More than 5 2.28%
- antidepressants 41.35%
- sleep medication 33.42%
- sedative (anxiolytics) 29.81%
- anti-psychotics 14.42%
In view of the percentage, it is important to ask about suicidal thoughts or attempts and it is necessary to pay attention to anxiety symptoms, such as (social) phobias and panic disorder, but also to ask for depressive symptoms, addiction, eating disorders, self-mutilation and dissociative disorders. The latest complaints are related to being traumatized and is as we now know a predictor of PTSD. But also in relation to severity of dissociation a clue of abuse before the age 6. Relational problems - personality problems / relationships - such as attachment problems also need attention. The problems are apparently so destabilizing that 28,85% indicates that they were hospitalized. That is higher than those with psychosis. It appears that many can have a whole range of complaints that are missed if only PTSD as a diagnosis is preferred.
Complex PTSD is not yet an official DSM-5 diagnosis, as a result clinicians feel compelled - according to DBC (diagnosis treatment combination) - to use other axes and we run the risk of not seeing the whole picture and losing an integrative approach and point of view. PTSD as a diagnosis is subject to discussion and change. Change that, if it is up to the APA due to time and lack of consensus, the clinical experience with clients and their complaints will be more likely to lag behind the reality of the problems or complaints that clients are struggling with. It is as Onno van der Hart - emeritus professor - wrote "the epicenter is the traumatic experiences." We can almost definitely conclude that many people have long-term experiences of child abuse, rather than just a one-off or a limited number. It is worth noting that they with psychosis might be better helped. This is only a preliminary result, later this year a quantitative data analysis will be done to further investigate links. Nonetheless, the quality of care is generally judged under a sufficient number of 6. This means that mental health care must score better. I hope to be able to explain in a follow-up study why.
It is time for us to get a picture of the extent of the problems and the quality of help provided. In other words, what are the complaints victims suffer from and how are they helped? Participating in this research is completely anonymous. No personal data is associated with this investigation. The better we know how the average victim is doing and how the help is experienced, the better one can respond to this and form policy on it. To my knowledge, no large-scale investigation into complaints and experiences has yet been done.
Often one uses the statement "tip of the iceberg", which partly indicates that many are unjustly ashamed and do not dare to tell their story. But also how do they find their way to good help. The question is, how are they doing, who have been abused in their youth, what are they suffering from, how do they experience the help? To give a good answer to their needs, it is important that we know how they are doing. Only when we know how big the problem is and what their problems are, only then can we formulate a better answer.
What will happen with it?
This survey will be open for a number of months and the results will be made known on this site and possibly offered to those responsible. It is my intention, among other things, to see how satisfied people are in general about the help, but also to see which complaints, based on a diagnosis, are coincidental or have a connection. Again without linking personal data and therefore anonymously.